Jesy Nelson proudly shared an update about one of her twin daughters on Tuesday, posting a photo of her sitting upright in her wheelchair.
Jesy revealed in January that her now one-year-old twins, Ocean and Story, had been diagnosed with SMA Type 1, a rare muscle-wasting condition.
Because of the late diagnosis, the girls are unlikely to be able to walk and need special equipment to help them breathe at night, as well as feeding tubes.
On Instagram she wrote: ‘She looks like such a big girl without a snake on her face and sitting upright in her chair’.
Last month, Jesy revealed she had been left ‘heartbroken and outraged’ as she vowed to ‘keep fighting’ after attending parliament for MPs’ debate on SMA screening from birth.
Jesy traveled to Parliament for a debate on whether newborn screening for the disease would be rolled out across England.
It comes after Jesy gave fans a glimpse into the moment she learned of her twin daughters’ SMA diagnosis in her new Amazon Prime documentary, Life Changing.
The 35-year-old released a trailer for the show on Thursday, ahead of its July 17 release.
