This is the news Jesy Nelson has been waiting for.
The Boys singer, 34, has shared deeply personal news, announcing that spinal muscular atrophy (SMA) will now be debated in parliament.
It is pertinent to mention that her twin daughters, Ocean and Story, had been diagnosed with SMA (Spinal Muscular Atrophy) Type 1.
SMA is a rare muscle-wasting condition that makes it unlikely for children to walk and often requires special equipment to help them breathe at night, as well as feeding tubes.
The singer, who has campaigned tirelessly for the NHS, shared that the UK government has confirmed that the petition to add SMA to newborn screening in England will now be debated in Parliament on June 22.
The news comes after calls for the health secretary to override the committee’s guidance and make effective treatment more available on the NHS.
Last month, Jesy shared her delight when the NHS announced it would be rolling out ‘heel prick’ tests on newborns for SMA.
Wes Streeting also announced plans for more than 400,000 babies to be screened for the condition from October 2026.
Jesy has continued to update her followers on her twins’ SMA journey over the past few months.
